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Connecting to PWP around the world

Dear Journal

The power of the Internet has carried our message to PWP in all 50 states (plus Washington D.C.) and more than 50 countries, exceeding our wildest expectations. Major Parkinson’s disease organizations, at home and abroad, have helped promote awareness of our web site by linking to us from their web sites.

A quarter of our visitors come from outside the United States, reflecting the fact that Parkinson's disease knows no geographic boundaries, nor do those seeking a cure, or at the very least, hope. Visitors have made their way to our site from:

 

     

coming soon to your town

Taking our show on the road

In November, 2007, we made our inaugural presentation based on our web site to 320 people at the Arizona Chapter of the American Parkinson Disease Association’s Power Over Parkinson’sTM conference in Phoenix. The response was overwhelming. People waited in line to shake our hands and thank us for inspiring and empowering them to make a positive difference in their lives. We could not hope for more than this.

Judging by the audience response both at the conference and on the feedback form… Jean Burns and Sheryl Jedlinski were very popular and very well received,” says Tom Viviano, Coordinator of the Arizona APDA Information & Referral Center in Phoenix. “These two young onset women have developed a terrific web site and presentation on living a full and interesting life with PD.

We had so much fun sharing our personal stories and meeting so many fellow PWP in Phoenix that we have decided to “take our show on the road.” E-mail us at plan4life @ pdblogger.com  for more information or to book us for your educational conference.

What you have told us about this site

"You offer great information with a warm, caring touch. Thank you for opening up your lives so others can benefit."

“An excellent website! It really made me feel more hopeful that there are ways to fight back. I look forward to following along as we deal with this together."

“Great job helping people take control and not let this disease take their life.”

“Kudos for creating such a dynamic look and upbeat tone. Graphics and copy reflect the positive outlook one needs to live with any adversity and you two have it in spades.”

“… (the site is) a help to anyone with PD to learn to try and embrace the thing that sometimes attempts to throttle you.”

“Great site. I needed to see encouragement today.”
 

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World Parkinson's Congress

PD tulip designed by Karen Painter **Legal Disclaimer: The contents of this website are solely for information purposes about our experiences and are not in any way to be considered medical advice. For medical advice, contact your doctor.  While we make every effort to assure that the information is accurate and up to date, an error may occasionally occur.  All information and materials are provided AS IS without any warranty of any kind.  In no event will this website or its owner be held liable for any damages arising out of information contained in our website.